The Lived Experiences of South Asian Adult-Child Caregivers to Parents with Dementia Living in Western Nations

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Issue Date
2025-12-01
Authors
Natt, Kiran
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Abstract
This capstone has found that while there are some positive elements to providing care to a parent with dementia within South Asian communities in Western countries, it is also a role that comes with many challenges. The caregivers face various systemic barriers related to medical systems, culture, religion, and language when trying to access external support. A cultural expectation of filial duty to care for one’s parent in old age without help can also act as a barrier to seeking support. These barriers leave adult children in a position of taking on most of the care on their own. Minimal awareness of dementia within South Asian communities leaves caregivers struggling to learn about it while trying to adopt a new way of life. Caregivers often do not open up because of the ignorance, stigma, and shame surrounding dementia and the social pressure to be self-sufficient. This can prevent them from opening up to family and friends about what they are going through. The hardships ultimately result in decreased mental wellbeing for South Asian adult-child caregivers which warrant the need for mental health support specific to these populations.
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Keywords
dementia , South Asian , adult children , parents , caregivers , Western nations , lived experiences , filial duty , systemic barriers , mental health , stigma , coping , burden
License
Attribution-NonCommercial-NoDerivs 3.0 United States , openAccess
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